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'End the stigma on epilepsy'
published: Monday | June 2, 2008

Noel Thompson, Freelance Writer


Professor of neurology, neuroscience and neurogenetics at Baylor College of Medicine in Houston Texas, Dr Jeffrey Noebels (left), chats with chairman of the First North American Regional Caribbean Congress on Epilepsy Dr Amza Ali. The two were at the congress which was held at the Rose Hall Resort and Country Club in Montego Bay. - photo by Denise Reid

WESTERN BUREAU:

Health workers worldwide are being urged to increase public awareness of epilepsy, and help reduce the stigma associated with the illness.

Health Minister Ruddy Spencer made this call Saturday in Montego Bay while addressing persons involved in Jamaica's health sector, and other countries, at the First North American Regional Caribbean Congress on epilepsy. The symposium was held at the Rose Hall Resort and Country Club.

Public discourse

"Epilepsy has never been a subject that has enjoyed the kind of public discourse that is normally associated with illnesses such as HIV/AIDS and mental conditions," Spencer said.

He said that stigma associated with any illness is likely to have a negative impact on patients, affecting their behavioural patterns and self-esteem. He referred to a number of studies which show that persons with epilepsy do not receive treatment. He said reasons for this are usually economic and social.

Spencer urged specialists and policymakers to develop a policy document that will address stigma and discrimination.

Assessment endorsed

Dr Amza Ali, president of the Jamaican League Against Epilepsy (JLAE), endorsed Spencer's assessment. Speaking to the topic, 'Epilepsy: Beliefs in Jamaica', Dr Ali said studies have shown that one reason for discrimination against epileptics in Jamaica is rooted in belief in the supernatural.

"There are significant misconceptions regarding people with epilepsy worldwide," he said.

Approximately 150 persons involved in the health industry attended the conference, which is scheduled to be held annually in Jamaica.

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